As this day approaches I can see more and more every day the wear it is putting on my husband. As a good friend stated, you can literally see it on Dan's face, so after dinner last night I asked Dan what is main concern with this surgery was. He said that my daughter will die. He said that there is a chance that with them working on her heart that it will stop and the doctors won't be able to get it started again. He then said, if we don't do the surgery my daughter's heart will stop, so either way there is a chance my daughter's heart will stop!
To most people, or some, they would think that it is a little bit irrational to think of the most extreme circumstance since this surgery that is being performed is the safest and most common heart surgery they perform on kids. To most people they would be concerned for their child, but they wouldn't have the same gut wrenching fear of losing....ANOTHER...child. It isn't like we haven't experienced having a child/children die on us. This is a very real fear for Dan, for Shane, for me. When your son asks you if his sister is going to die, you can tell him No, but it is an empty statement. I honestly don't know. Is it possible, yes! Is it plausible, yes! Is it probable, No! Good thing we threw a wrench in Hood's Three P's!
For those of you who haven't seen a little filer floating around facebook, some of Dan's friends at work have decided they wanted to put on a benefit for Sophie so they are doing a Rock-N-Bowl for her on October 27th. It is amazing how this thing is spreading like wildfire, faster I think! I know that isn't a funny joke with all the fires out west that happened this summer, my apologies! :) We are so blessed to have so many wonderful people in our lives that want to help Sophie and us as much as they can. It is a different feeling though being on the receiving end of the deal. We are usually the ones helping others. It am not sure it is a feeling I am comfortable with. It doesn't stop there. Other people at Lenawee Stamping are putting on a car wash this Saturday and the proceeds are going to Sophie. Oh, and there is a bake sale the day of her surgery! How are there so many giving people under one work place? I wish I knew!
With all of the people wanting to help, it is becoming a little overwhelming. Dan heard someone say that they could only afford to help him out once. It made him feel like a charity case and he hates that feeling. I just want everyone one to know, we didn't ask for any of this nor did we expect it. All we did is ask for prayers that all of our needs would be met!
Speaking of needs being met. I do have to share with you these blessings we have received since the last time I posted:
I asked for our financial needs to be met during our time off...I received a blessing here!
With buying a house we had to use up most of our savings and I didn't want to touch the rest of it. A large bill was due and since I have been missing a lot of work for Sophie, money was a little tight....I received Sophie's 1st check from Mental Health Authority for the amount we needed! The next day I received $50 for transportation reimbursement for Sophie's doctor appointments! I just wanted to sing His praises!
Also, my post about SSI sucking, well it is true. We were medically approved because they found Sophie to be medically disabled, but we were financially denied. That means, Sophie receives nothing. If anything happens to where we lose our income, we can reapply. I guess I should just quit my job, have 5 more kids, stop being a responsible adult and contributing part of society, and then, just maybe, Sophie will get the help she needs as she gets older.
