July 23rd

Surgery has been rescheduled for July 23rd. Dr. Butto is still going to try and use the device to close the ASD and if successful, we won't have to endure the open heart surgery.

Sophie is amazing. She is so resilient. It is like nothing ever happened and she is happier than ever! The medicine Sophie is on, Keppra, has a 1 in 3 chance of making Sophie extremely irritable. PTL that Sophie wasn't that1....so far. The reason I say so far is because it has only been 2 weeks. 2 weeks isn't a lot of time for that medicine to be in her system.

We just increased Sophie's dosage from 4ML 2x daily to 8ML 2x daily. I am hoping that this increase isn't going to affect her either. Time will tell.

In the mean time, Sophie has started at a new baby sitter. We are truly blessed to have someone with a child that has the same syndrome as Sophie living only 5 minutes away. Cynthia has graciously agreed to watch Little Miss for us. It isn't that our other sitter wasn't good with Sophie, but this is just a better fit for Sophie. Cynthia knows how to work with Sophie in her therapy and what to watch for in regards to seizures. For that, I am thankful.

For Obama Care, I am not thankful! Had to throw that in there.

Sophie spent her early afternoon in a pool with Cynthia, Lukus, and Mattie. Luckily, Cynthia gets my humor when I tell  her that if anything happens to Sophie, she dies! :)

Shane just finished up his regular season of baseball. They will have 1 week off and then go in to a play-off game to determine their ranking. Their ranking isn't so great but Shane played on a team where they were taught to play the game fair and clean, not dirty like some of the others. Shane has turned out to be quite the catcher and we are proud of him. He has taken quite a few hits at home base as well and every time, he just stands right back up. 

Have a wonderful day and stay cool.